We had a difficult night last night. Avery only slept a couple hours, was very unsettled, and his blood work this morning showed an even lower hemoglobin count (79) and a high potassium amount (5.7) which disqualifies him from his PLEX treatment until it's lowered to 5.5.

The Dialysis team is also fully booked today, so if we don't get his potassium down immediatley, they wont have a spot for him.

We're going to flush his system with saline and see if his levels balance out in time for the PLEX to happen.

Pls pray for God's orchestration through these complications

UPDATE: Gods answers prayers! turns out poking him with a needle to draw blood yields inaccurate results as he tenses up and the sample is skewed. The saline flush was a bit gratuitous in fact and we have asked that the nurses draw blood from the CVL line instead.

The second draw (from the CVL line) showed lower potassium (4.7) and higher hemoglobin (89) and lower white blood cells (11). The PLEX team was able to accommodate us and we're doing PLEX #4 is on!

UPDATE #2: We ended PLEX 8 minutes early so he didn't get the full treatment. His shaking got pretty violent during the end of the treatment so we decided to stop. He ended up settling down once we put in back in his stroller. It's unclear whether or not the shaking was induced by him being upset and overtired. Friday's PLEX will happen in the stroller.