Tuesday, 23 August 2016

On Monday morning the head nurse practitioner who's in charge of Avery was surprised to see Avery's improvement over the weekend. She mentioned that she had not seen anyone have such a quick rate of improvement before. We're pleasantly happy and are hoping the rate continues at this current pace.

Avery's started to eat over the weekend, so we've been feeding him small bits of food. The hospital is still just recommending taste, but Avery's able to eat a timbit/cupacake on his own.

His 3 year old temper is coming back (which is a mixed blessing) as he's voicing his opinions on what he does and doesn't want to do, and when he wants to do them. One example is a friend of ours who has a beard came to visit. At multiple points during the visit, when Avery wanted a touch of his bead, he'd stretch out his hand and say "rough"; at which point our friend would have to walk over and let Avery touch his beard. There must be some healing powers in that beard of his.

Physio has been going well also as Avery's showing great improvement day to day where they're already making him stand and stretch out his right ankle that's tight, which postures his foot down. He's able to put some power in his quads and stand up, but needs to work on his balance and strength. He's also getting crafty, as he's trying to use excuses like going to the bathroom to get out of therapy (when in fact he doesn't need to).

Yesterday and today, Avery's become a little sensitive to light and we've seen some awkward movements and eye rolls. We're not entirely sure what the cause of this is, but as he's changing, I suppose any of these can be attributed to the healing process.

Thursday (Aug 25) his Central Venous Line is being removed, so we'll spend most of the morning at Sick Kids; the procedure will happen at 11:30 under General Anaesthesia.

3 comments:

  1. So good to read of such great progress!! That's funny about the beard. Made me laugh. Well keep praying for continued progress and healing.

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  2. Cal, I think I will grow a beard for Avery ;) Great updates.

    Nothing, including human suffering, happens by chance......
    - John Calvin

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  3. Was praying. I read this today and thought of Avery:

    Indeed he was ill, near to death. But God had mercy on him, and not only on him but on me also, lest I should have sorrow upon sorrow. (Philippians 2:27)

    Slightly out of context (cuz Paul is speaking of Epaphroditus), but still... in God's great mercy, Avery was ill to the point of death, and you can now praise the Lord for his grace, despite the constant mystery and suffering.

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