Today Avery had his third PLEX treatment that went a little less smoothly than the second treatment mainly because of the timing of the ativan given was too early, and wore off by the time the PLEX started. He was awake and agitated during most of the treatment, but Caroline and I were able to calm his nerves with Peppa Pig while getting a massage.

His bloodwork showed a lowered Hemoglobin count which (if he shows signs of dropping any more this evening) will need to do a blood transfusion to replace the count. I have already signed the papers to conduct the transfusion in the event he needs it.

Please pray that his body comes around and that he does not need to do transfusion tomorrow.

Other than that, he's had a decent day (with a long nap after PLEX) with the occasional fits of tremors, but we feel its triggered first by him being upset about something, then it starts running uncontrollable until we can distract him.

He has been the most vocal in a while, and was able to lift his arms to have me pick him up (but that was just one time).

His white cell count hasn't dropped since the steroids / IVIG / PLEX, so his body is still fighting itself. Pray his body starts to reboot so its stops fighting itself.

I've charted his ability to move over time and today, his eyes and arms are the only thing that have improved since we've been admitted.