The Hulk
Yesterday, Avery was the talk of the Neurology ward as he suddenly showed signs of recovery where he was able to comprehend our questions and react by pointing to various body parts (his tummy, his knee, mouth, nose, high five, etc.). The team was quite excited and almost everyone had to come by to see him perform. It was very encouraging to see the entire staff genuinely happy with his progress.
A MRI was also conducted yesterday, where they wanted to see if the inflammation in the brain had subsided. The below image shows the MRI before PLEX had started (right) vs after 6 treatments (left). You can see the white areas have reduced dramatically but still have some ways to go. Additionally, the swelling on the right is clearly pressing against the two small black kidney bean looking areas that obviously have an averse affect on him.
The road ahead will be rough. Avery's still very easily agitated, experiences dystonia, cannot speak, move freely, walk, eat, grasp, is in pain, has tremors, etc. He's heavily medicated to treat the above symptoms.
If anything throws him off, he becomes the HULK and is almost impossible to calm down / console. He becomes very angry with his situation and as a 3 year old, doesn't have the patience to see his situation through.
Pray that Caroline and I show love through patience and kindness (1 Corinthians 13:4) as its sometimes very difficult to reason with the HULK.
This is such great news!! So good to read some encouraging words and so promising to see the pictures of his precious little brain. We will keep praying for more and more. And also for you guys to have patience with the hulk when he makes his appearances!
ReplyDeleteYahhhhhhh!!!!!! :) So happy about the progress.
ReplyDeleteContinuing to think of you guys and pray.
Great to hear the progress!
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